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Addressing (Relentless) Pain in Hypermobility Disorders

Updated: Mar 26


Is your body on fire? Do you feel like you simply cannot make it another day?


This is what I hear from my bendy patients - sometimes as young as 10 years old. It is tragic, but there is HOPE!

When discussing conditions associated with hypermobility, like Ehlers-Danlos Syndromes (EDS) or hypermobility spectrum disorders (HSD), pain is often mysteriously left out of the conversation. Persistent pain can be a daily burden, impacting every part of peoples’ lives.


We must address pain as early as possible in the process in order to have our very best opportunity for long-term health and well-being.


In this latest episode of the Bendy Bodies Podcast, I took the guest seat and peeled back the onion-like layers of the development of chronic pain and options for managing it. I discussed factors that influence how much pain a person experiences, and named some frequently missed contributors to chronic pain.


I dispelled some common myths about chronic pain, and explained why our thoughts and actions are important in how we perceive pain. I cautioned that there’s often no one single solution to pain and shared my multidisciplinary approach to a patient experiencing chronic pain, breaking down each step of my long-term care plan.


A perfect companion to Episode 24, with Beth Darnall, “Thriving with Chronic Pain”, this episode is great for anyone suffering from chronic pain.


Listen here.


Access all episodes at BendyBodies.org.


Learn more about my cohost, Jennifer Milner, here.


Please subscribe, rate and leave us a review to help grow our audience and raise awareness about frequently missed and misdiagnosed hypermobility disorders, like EDS and HSD!


Bendy Bodies Podcast is available on Anchor, Apple Podcasts, Google Play, and Spotify. Feedback is greatly appreciated and can be directed to info@bendybodies.org.


https://www.danceusa.org/informational-papers

https://www.hypermobilitymd.com/

https://www.ehlers-danlos.com/

https://www.chronicpainpartners.com/

https://edswellness.org/

https://www.ehlers-danlos.org/

http://hypermobility.org/

https://tinyurl.com/bendybodiesyoutube

https://tinyurl.com/bendybodiesapplepodcast

https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/ehlers-danlos-syndromes-toolkit.aspx

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#EhlersDanlosSyndromes #EDS #zebrastrong

#HypermobilityDance #HypermobilityBallet #HypermobileDancers

#Hypermobility #BendyBodies #BendyBodiesPodcast

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