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Addressing (Relentless) Pain in Hypermobility Disorders

Updated: Sep 13, 2021

Is your body on fire? Do you feel like you simply cannot make it another day?

This is what I hear from my bendy patients - sometimes as young as 10 years old. It is tragic, but there is HOPE!

When discussing conditions associated with hypermobility, like Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD), pain is often mysteriously left out of the conversation. Persistent pain can be a daily burden, impacting every part of peoples’ lives.

We must address pain as early as possible in the process in order to have our very best opportunity for optimal long-term health and well-being.

In this episode of the Bendy Bodies Podcast, I took the guest seat and peeled back the onion-like layers of the development of chronic pain and options for managing it. I discussed factors that influence how much pain a person experiences, and named some frequently missed contributors to chronic pain.

I dispelled some common myths about chronic pain, and explained why our thoughts and actions are important in how we perceive pain. I cautioned that there’s often no one single solution to pain and shared my multidisciplinary approach to a patient experiencing chronic pain, breaking down each step of my long-term care plan.

A perfect companion to Episode 24, with Beth Darnall, “Thriving with Chronic Pain”, this episode is great for anyone suffering from chronic pain.

Episode transcript:

Episode 25 - Addressing Pain in Hypermobility Disorders with Linda Bluestein, MD
Download PDF • 174KB

Access all Bendy Bodies podcast episodes.

Learn more about my cohost, Jennifer Milner.

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Access the resources mentioned during this episode.

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