It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use. In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode: · What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome) · How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related · What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis · How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware” · What correlations exist between Crohn's disease, irritable bowel disease and RLS · Why it is so crucially important to listen to AND believe our patients · How Mast Cell Activation Disease and MCAS differ from one another · Why the term “syndrome” can be problematic · What environmental factors can play a role in MCAS · When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis · What testing can be performed for MCAS and the significance of tryptase levels · How YOU can help support our nonprofit documentary film and free online educational library, Still Standing. The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life. This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at www.BendyBodiesPodcast.com. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.gidoctor.net/provider/leonard-weinstock-md https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/ https://www.mcasfund.org/ https://www.nowleap.com/leap/ https://www.ifm.org/ https://ldnresearchtrust.org/ https://www.ldnscience.org/ https://www.genebygene.com/ #BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast #PodcastDiscoveries #EDSdoctor #CompressionSyndrome

It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use. In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered. Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode: · Inequality in healthcare and how we can best advocate for ourselves · Why we should prioritize diversity, equity, and inclusion in medical spaces · The need for personal responsibility when learning about sensitive topics · Discrimination and power dynamics in the healthcare setting · Handling microaggressions · Addressing internalized ableism · The importance of outward visible signs of safety for marginalized groups such as LGBTQ plus and BIPOC This important conversation about inequality in healthcare will leave you feeling more informed, better prepared to tackle that next step, and with a better understanding of the multitude of factors that can impact the healthcare you receive. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at www.BendyBodiesPodcast.com. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.healedandempowered.com/ #Podcast #EDSPodcast #HealthcareInequality #LGBTQ #BIPOC #Hypermobility #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #EhlersDanlos #PainManagementJourney #EDSdoctor

It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use. In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York. Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension. Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws. He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry. YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode: · How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation · Why people with EDS are at increased risk of craniocervical instability · What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability · Why he started performing surgery for Eagle’s Syndrome · Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems · Causes of elevated intracranial pressure This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment. It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our YouTube channel or listening to this episode on your favorite podcast player. Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on YouTube beneficial. This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at www.BendyBodiesPodcast.com. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://chiariedscenter.com/ #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor

It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use. In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine. Following dental school, she served in the US Air Force for five years as a general dentist. After her time in the Air Force, she completed a two-year residency in Orofacial Pain and Oral Medicine at the University of Southern California. Dr Smith is also Dr. Bluestein’s amazing TMD doctor! YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode: · Why the jaw is problematic so frequently in those with joint hypermobility · How ligamentous laxity contributes to jaw dysfunction · The influence of hormones and puberty on jaw pain and function · Open locking - what is it and how can you reduce the risk? · How you can make dental visits less traumatic This important conversation about orofacial pain will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact pain in the teeth, jaw pain, and open and closed locking. Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at www.BendyBodiesPodcast.com. YOUR bendy body is our highest priority! Products, organizations, and services mentioned in this episode: https://www.ofpcos.com/ #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor