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Biomarkers - Are we Close? with Dr. Clair Francomano
01:13:38

Biomarkers - Are we Close? with Dr. Clair Francomano

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, has an in-depth conversation with Dr. Clair Francomano, a leading expert on connective tissue disorders and Chair of the Medical and Scientific Advisory Board for the Ehlers-Danlos Society. Dr. Francomano shares her insights on diagnosing hypermobile Ehlers-Danlos Syndrome (hEDS) versus hypermobility spectrum disorders (HSD), the current state of genetic testing, and emerging biomarkers (are we close?) that could revolutionize hEDS diagnosis. She discusses the potential connections between EDS, mast cell activation syndrome (MCAS), and postural orthostatic tachycardia syndrome (POTS), offering advice for patients navigating this complex landscape. With updates from ongoing research, this episode is essential listening for those with EDS or related conditions. Takeaways: Differences Between hEDS and HSD: Dr. Francomano explains the nuanced distinctions between hypermobile EDS (hEDS) and hypermobility spectrum disorders (HSD), noting that these categories may overlap more than previously thought and might benefit from unified diagnostic criteria in the future. Genetic Testing Red Flags: While genetic testing can be useful, Dr. Francomano highlights specific “red flags” in family history or personal health that should prompt a referral to a geneticist for further investigation. Current Limitations of Genetic Testing for hEDS: Unlike other types of EDS, hEDS currently has no identified genetic markers, meaning diagnosis relies on clinical criteria rather than genetic testing alone. Emerging Biomarkers Show Promise: New studies, such as those exploring fibronectin and calocrine, suggest potential biomarkers for hEDS and HSD, which could transform diagnosis and treatment in the future. Holistic Approach to Comorbidities: Dr. Francomano discusses how hEDS often presents with comorbidities like POTS and mast cell activation syndrome, recommending a comprehensive, multidisciplinary approach to manage these interconnected symptoms effectively. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Clair Francomano Her Book: https://amzn.to/4e3eSaF Instagram: @dr.clairfrancomano Youtube: @DoctorClair Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
Guinea Pig
00:45
Office Hours: My Life With EDS
55:13

Office Hours: My Life With EDS

In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Linda shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Linda reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you’re newly diagnosed or a long-time EDS warrior, you’ll find plenty of insights and hacks to apply to your own journey. Takeaways: Personal Struggles Led to Professional Focus: Dr. Linda's own experiences with chronic pain, multiple surgeries, and hypermobility drove her to shift from being an anesthesiologist to becoming a hypermobility expert and advocate. Hypermobility Affects Multiple Body Systems: Dr. Linda's journey highlights how hypermobility and Ehlers-Danlos Syndrome (EDS) can impact various systems in the body, including joints, gastrointestinal issues, and the nervous system. Tarlov Cyst Surgery Was a Turning Point: Dr. Linda’s diagnosis of a Tarlov cyst and subsequent surgery gave her tremendous relief after years of pain, sparking her commitment to helping others with similar conditions. Movement is Critical for Recovery: Despite the fear of injury, Dr. Linda emphasizes the importance of movement for those with EDS, as it is essential for maintaining strength and preventing further dysfunction. Secrets to Living Better: Dr. Linda shares the approach she used to improve her own quality of life. This holistic method to help patients manage EDS and chronic pain includes movement, nutrition, psychosocial support, nutritional supplements, and medication. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
Cysts
00:56
Tarlov Cysts Truths with my Surgeon, Dr. Frank Feigenbaum
01:23:18

Tarlov Cysts Truths with my Surgeon, Dr. Frank Feigenbaum

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the complexities of diagnosing these cysts, how they affect the nerves, and the groundbreaking surgical techniques he developed. Dr. Bluestein reflects on her personal journey through surgery and recovery, providing listeners with a unique patient-surgeon perspective. Tune in to learn about Tarlov cyst symptoms, diagnostic challenges, and how surgery can restore quality of life. Takeaways: Tarlov Cysts Can Be Symptomatic: While often dismissed as asymptomatic, Tarlov cysts can cause severe pain and neurological symptoms by compressing surrounding nerves. Selective Nerve Blocks Are Key for Diagnosis: To confirm that Tarlov cysts are the source of symptoms, selective nerve blocks can help diagnose and plan surgical interventions. Surgery Is a Lasting Solution: Dr. Feigenbaum’s unique surgical approach, involving draining and wrapping the cysts, has shown long-term success with no cyst recurrence at the treated sites. Recovery Takes Time: Nerve healing after surgery can take weeks, months, or even years. Patience is key, as symptoms may improve gradually. The Least Invasive Approach Wins: Dr. Feigenbaum emphasizes doing as little as possible to the cysts during surgery to reduce nerve damage, offering the best chances for recovery. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Frank Feigenbaum: Website: https://www.frankfeigenbaum.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
The Untold Secrets to Dance Strength with Adji Cissoko
54:54

The Untold Secrets to Dance Strength with Adji Cissoko

In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet. From dealing with injuries to discussing the importance of sleep, nutrition, and cross-training, Adji provides a glimpse into the discipline required to succeed in dance while taking care of her body. Listeners will learn valuable lessons on injury prevention, building strength, and listening to your body, straight from one of the most captivating dancers in the world. Takeaways: Strength is Essential: While flexibility came naturally to Adji, she quickly learned that building strength is crucial for controlling movement, especially in ballet. Strength allows dancers to safely showcase their flexibility without risking injury. Listening to Your Body: Adji emphasized the importance of tuning into your body to understand when to push through fatigue and when to rest, striking the right balance to avoid injury while still progressing. Sleep and Recovery Matter: Adji prioritizes sleep, often getting 9 to 10 hours per night, to allow her body to recover and stay resilient, particularly in demanding environments like high-altitude performances. Cross-Training for Dance Longevity: To maintain balance and strength, Adji incorporates Pilates, gyrotonics, and strength training into her routine, allowing her to stay in peak condition and mitigating injury risks. Flexibility Doesn’t Equal Strength: Adji learned early on that flexibility alone isn’t enough for successful dancing—building core and muscle strength is key to controlling movements and maintaining beautiful lines. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Adji Cissoko: Instagram: @adji_cissoko Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
Benefits of Yoga
00:53

Videos:

Publications:

Why double-jointed people are more likely to have health problems

Author: Rachel Fairbank

 

Why do I hurt? Gaining a better grasp on hypermobility and Ehlers-Danlos Syndrome

Author: Jackie Duda

MDs With Chronic Illness Live in a Different Medical World

Author: Sarah Yahr Tucker

 

Does Hypermobility Make You More Prone to Sports Injuries?

Author: Beth Krietsch

 

Hope for Hypermobility: Part 2-An Integrative Approach to Treating Symptomatic Joint Hypermobility

Author: Victoria Daylor, BFA, Cortney Gensemer, PhD, Russell Norris, PhD, and Linda Bluestein, MD.

 

Hope for Hypermobility: Part 1-An Integrative Approach to

Treating Symptomatic Joint Hypermobility

Author: Victoria Daylor, BFA, Cortney Gensemer, PhD, Russell Norris, PhD, and Linda Bluestein, MD.

 

Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?

Author: Sarah Lazarus

My daughter and COVID: a tale of 3 doctors

Author: Laura Fernando and Linda Bluestein, MD  

 

What a lifetime of gaslighting by other doctors feels like

Author: Sarah Cohen, MD and Linda Bluestein, MD  

The journey to diagnosing a mysterious illness

Author: Linda Bluestein, MD and Lauren Vasko

 

Besides Being Bendy, Hypermobile Dancers May Experience These Surprising Symptoms

Author: Linda Bluestein, MD

The difficult to diagnose comorbidity that plagues Ehlers-Danlos syndrome patients 

Author: Linda Bluestein, MD and Julie Griffis, PT

Inflammation in the Dancer

Author: Linda Bluestein

The Dancer's Planning Guide to Optimizing Immunity During COVID-19 and Beyond 

Author: Linda S. Bluestein

Diagnosis of mast cell activation syndrome: a global “consensus-2” 

Authors:  Lawrence B. Afrin, Mary B. Ackerley, Linda S. Bluestein et al

"Disjointed | Navigating the Diagnosis and Management of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders"

Editor: Diana Jovin, Contributors: Paldeep Atwal, M.D., Richard Barnum, M.D., Linda Bluestein, M.D. et al

 

Pain Management in Patients with Hypermobility Disorders

Author: Linda Bluestein 

Perioperative Care in Patients with Ehlers Danlos Syndromes

Authors: Pradeep Chopra and Linda Bluestein 

Understanding Hypermobility in Dancers

Author: Linda Bluestein for Healthy Dancer Canada

Anesthesia and Surgery Safety Card

Created by Linda Bluestein 


 

Podcasts:

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Bendy Bodies with the Hypermobility MD
Podcast

Founder and Host,

Dr. Linda Bluestein, MD

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Hypermobility Problems with Anesthesiologist Dr. Linda Bluestein

Knock Knock, Hi! with the Glaucomfleckens Podcast

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Hypermobility: Separating Fact From Fiction with Dr. Linda Bluestein

Acrobatic Arts Podcast

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Ehlers-Danlos Syndrome and Beyond - Health Connections You Need to Know with Dr. Linda Bluestein

Becoming Immune Confident Podcast

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Holistic Approaches to Navigating Ehlers-Danlos Syndrome, POTS, and MCAS

Modern Pain Podcast

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Pain and Hypermobility with Dr. Linda Bluestein - Mast Cell Matters Series

The POTSCAST

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Hypermobility Disorders: The Power of Proactivity with Linda Bluestein, MD

Acrobatic Arts Podcast

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Treatment Room Secrets #19 - Dr. Linda Bluesteim M.D. - Hypermobility

Treatment Room Secrets Podcast

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Case #05: Kyle
With Dr. Linda Bluestein

Symptomatic: A Medical Mystery Podcast

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Hypermobility Spectrum Disorders with Dr. Linda Bluestein

Redefining Yoga

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If you can't connect the issues, think connective tissues 

The Podcast by Kevin MD

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The Link Between Hypermobility Spectrum Disorders, Hypermobile-EDS, MCAS, and Endometriosis with Dr Linda Bluestein

This EndoLife

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003- Dr. Linda Bluestein M.D.-Hypermobility, Ehlers Danlos Syndrome, and Why You Are Stronger Than You Believe.

 Whealth Podcast

Schedule an Event
with the Hypermobility M.D.

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