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Why can you feel almost functional one day and completely wrecked the next with hypermobile EDS, HSD, POTS, or MCAS? And how do you know whether you need more treatment, more rest, more movement, or an entirely different approach?

FatiguePelvic HealthPOTS
211
with Dr. Ina Stephens, Christy Jagdfeld, Dr. Megan Fitzgerald

Is Brain Inflammation the Missing Link? Brain Inflammation Collaborative & Dr. Ina Stephens

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What if some of the most disabling symptoms in EDS, HSD, POTS, MCAS, ME/CFS, and long COVID are being driven by something we still struggle to see on standard testing? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by guest co-host Dr.

Brain FogInflammationPOTS

What if being “naturally flexible” is actually the thing putting you at risk for injury? Dr. Linda Bluestein welcomes back Dr. Emily Scherb, known as The Circus Doc, for a fascinating conversation about what circus performers can teach all hypermobile people about flexibility, strength, joint control, and injury prevention.

ExerciseInjury PreventionDance & Performing Arts

Tongue tie and POTS? EDS without obvious hypermobility? Perimenopause making symptoms worse? And tongue numbness after a nerve block? In this listener Q&A, Dr. Linda Bluestein, the Hypermobility MD, and recurring co-host Dr. Dacre Knight, medical director of the UVA Health EDS and Hypermobility Disorders Center, tackle some of the complicated questions patients are asking—and where the evidence is still evolving.

AnesthesiaWomen's HealthSurgery

Are surgical risks in EDS exaggerated, underestimated, or simply misunderstood? And how can patients tell the difference between a promising treatment and an expensive procedure being marketed ahead of the evidence? In this listener Q&A episode, host Dr.

GeneticsCraniocervical InstabilitySurgery

Why do some people with hEDS or HSD report meaningful relief with medical cannabis, while others feel worse, notice no benefit, or experience side effects? And what might these varied responses teach us about pain, the autonomic nervous system, gut function, and nervous system sensitization?

Integrative MedicineGI IssuesResearch

If you could listen to just one conversation about Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), what would you need to know?

GeneticsGI IssuesPOTS

Too many diagnoses. Too many opinions. Too many tabs open. Not enough clarity. If you've ever felt overwhelmed trying to navigate Ehlers-Danlos syndromes (EDS), Hypermobility Spectrum Disorder (HSD), POTS, MCAS, chronic pain, or other complex health issues, you're not alone.

GeneticsIntegrative MedicineResearch

"Exercise is good for EDS." So why do so many hypermobile people get worse when they try it? In this episode of Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein is joined by co-host Dr. Dacre Knight, Medical Director of the UVA Health EDS and Hypermobility Disorders Center, and physical therapist Dr.

ExerciseInjury PreventionPhysical Therapy
200
with Dr. Moira McCormack, Jennifer Milner

Hypermobility Then and Now

What happens when the original voices behind Bendy Bodies come back together 200 episodes later? In this special milestone episode, Dr. Linda Bluestein reunites with her original co-host, dance medicine specialist Jennifer Milner, and the very first guest ever featured on the podcast, Dr.

FatigueInjury PreventionDance & Performing Arts

You have been told it is just weight. Just diet. Just effort. For millions of women with lipedema, that is not just wrong. It is decades of unnecessary suffering. In this episode of Bendy Bodies, I sit down with Kasi Grosvenor and Jesse Cochrane from the Lipedema Foundation to pull back the curtain on one of the most misdiagnosed and misunderstood conditions in women's health.

Women's HealthResearchNutrition

Most people with EDS or HSD have been told to "exercise more," "eat better," and "sleep on a schedule," usually by someone who has never tried to do any of those things in a hypermobile, pain-flaring, dysautonomic body. This episode is different.

SleepDysautonomiaNutrition

In this "MythBusters" edition of the Bendy Bodies Podcast, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight tackle the persistent misconceptions surrounding Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and their frequent companions, Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS).

GeneticsPOTSMCAS

Dr. Jessica Eccles, an award-winning neurodevelopmental psychiatrist, returns for a deep dive into the profound connections between hypermobility, variant connective tissue, and the neurodivergent brain. In this conversation, she explores why individuals with bendy bodies are significantly more likely to be autistic or have ADHD, and how these conditions create a "spiky profile" of sensory and emotional challenges.

FatigueNeurodivergenceDysautonomia

In this essential conversation, Dr. Linda Bluestein welcomes pelvic health physical therapist and dance science expert Dr. Brooke Winder to explore the often-hidden intersection of pelvic health, performance, and joint hypermobility.

Pelvic HealthWomen's HealthInjury Prevention

In this enlightening episode, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight sit down with nationally recognized expert Dr. Anne Maitland to explore a revolutionary perspective on allergic and immune-mediated disorders.

InflammationIntegrative MedicineDysautonomia

In this highly requested follow-up, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight welcome back neuro-ophthalmologist Dr. Eric Singman to dive deeper into the complex intersection of the eyes, the brain, and Ehlers-Danlos syndrome. 

Craniocervical InstabilityNeurologyPOTS

Severe back pain that refuses to respond to treatment may sometimes have a far more serious cause than most people realize. In this episode of Bendy Bodies, Dr. Linda Bluestein speaks with Dr. Forest Tennant, a longtime physician and researcher who has spent decades studying adhesive arachnoiditis, a rare but devastating inflammatory condition affecting the nerves in the lower spinal canal.

NeurologyInflammationIntegrative Medicine

When living with Ehlers-Danlos Syndrome and hypermobility disorders, medications alone rarely resolve all the symptoms. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr.

SleepInflammationIntegrative Medicine

There is no magic treatment for Ehlers-Danlos Syndrome, POTS, or mast cell activation disorders, but there is strategy. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dacre Knight, MD, founding Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a practical and deeply thoughtful conversation about how complex chronic conditions should actually be treated.

Integrative MedicinePOTSMCAS

Why are people with Ehlers-Danlos syndromes, POTS, and mast cell disorders so frequently misdiagnosed, or dismissed entirely? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Dacre Knight, Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a wide-ranging conversation about why complex, multisystem conditions continue to fall through the cracks of modern medicine.

POTSDysautonomiaMCAS

Pelvic pain, bladder symptoms, and sexual health concerns are incredibly common in people with Ehlers-Danlos Syndromes, yet they’re often misunderstood, dismissed, or treated in isolation. In this episode of Bendy Bodies, Dr.

Pelvic HealthWomen's HealthDysautonomia

What would it look like if people with Ehlers-Danlos Syndrome finally had a true medical home? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens and Dr. Dacre Knight to share the story behind the newly launched University of Virginia Ehlers-Danlos Syndrome Center, how it came to be, why it was urgently needed, and what makes it fundamentally different from traditional models of care.

Integrative MedicineResearchPhysical Therapy

In this episode, Dr. Linda Bluestein is joined by Dr. Eric Singman, a neuro-ophthalmologist who lives at the intersection of the eyes, the brain, and the complex symptoms so many people with Ehlers-Danlos Syndrome experience.

Chiari MalformationCraniocervical InstabilityPOTS

In this expansive and deeply affirming conversation, Linda Bluestein and Shimi Kang explore a powerful idea: true healing comes from connection, not control—especially when living with chronic pain, nervous system dysregulation, or complex, overlapping conditions.

Brain FogNeurodivergenceIntegrative Medicine

In this episode, Dr. Linda Bluestein sits down with Lara Bloom, President and CEO of The Ehlers-Danlos Society, for a revealing look behind the curtain of the Society’s ambitious global roadmap to 2026. What will it take to finally change the trajectory for people with EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders)?

GeneticsResearchDysautonomia

Think EDS and pregnancy is a straightforward conversation? Think again. In this jam-packed Office Hours episode, I dig into everything I wish someone had told me and everything I’ve since learned from patients, research, and my own pregnancies.

AnesthesiaPelvic HealthWomen's Health

In this episode, Dr. Linda Bluestein is joined by Professor Tara Renton, a globally recognized expert in orofacial pain, to explore the nuanced world of facial pain, temporomandibular joint (TMJ) dysfunction, and migraine disorders.

TMJ/TMDHeadachesAnesthesia

In this raw and uncompromising conversation, Dr. Linda Bluestein and co-host Jennifer Milner sit down with Skylar Brandt, principal dancer with American Ballet Theatre, for a gripping look at what it truly takes to perform at the highest level.

ExerciseInjury PreventionDance & Performing Arts

In this solo episode, Dr. Linda Bluestein brings on her producers to help unpack the hidden complications that can follow seemingly routine medical procedures. From the lingering effects of breast surgery to the controversial use of nitrous oxide, Dr.

AnesthesiaCraniocervical InstabilityInflammation

In this eye-opening conversation, Dr. Linda Bluestein sits down with psychiatrist Dr. Janet Settle to unpack the medical mystery that is mast cell activation syndrome (MCAS) and why it may be hiding in plain sight as depression, anxiety, panic attacks, or even psychosis.

NeurologyInflammationIntegrative Medicine

In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change.

SurgeryDiagnosisMental Health

In this eye-opening episode, Dr. Linda Bluestein speaks with Dr. Alexis Cutchins, a cardiologist passionate about uncovering missed and misunderstood diagnoses. One of those? Pelvic Venous Disease, a condition affecting countless patients but rarely identified.

Pelvic HealthPOTSDysautonomia

Neurosurgeon Dr. Betsy Grunch on why a normal-looking MRI doesn't settle the question, and when spine surgery is — and isn't — the right call in EDS.

Craniocervical InstabilityNeurologySurgery

In this empowering episode, Dr. Linda Bluestein is joined by OG Bendy Bodies cohost, Jennifer Milner.  Jen is a ballet coach, Pilates trainer, and specialist in working with hypermobile bodies.

ExerciseInjury PreventionDance & Performing Arts

In this raw and reflective Office Hours episode, Dr. Linda Bluestein responds to listener feedback and dives deep into the cultural and clinical gaslighting faced by people, especially women, navigating complex health conditions.

Women's HealthNutritionMCAS

Abdominal pain in EDS can be a puzzle with countless hidden pieces. In this episode, Dr. Linda Bluestein welcomes back Dr. Pradeep Chopra for part two of their exploration into gastrointestinal problems. Together, they uncover overlooked causes of abdominal pain, from drooping intestines and tethered spinal cords to mast cell activation and nerve entrapment.

Pelvic HealthCraniocervical InstabilityGI Issues

In this informative and eye-opening episode, Dr. Linda Bluestein sits down with foot and ankle surgeon Dr. Patrick Agnew, who specializes in treating patients with joint hypermobility and connective tissue disorders like Ehlers-Danlos Syndromes.

AnesthesiaSurgeryInjury Prevention

Dr. Audrey Kershaw returns to chat with Dr. Linda Bluestein and demystify wisdom tooth extraction, appliances for TMJ disorder, and everyday oral health habits for people with EDS/HSD.

TMJ/TMDAnesthesiaCraniocervical Instability

Psychiatrist Dr. Shimi Kang on why play, rest and creativity aren't luxuries — and how burnout culture harms neurodivergent and high-achieving families.

NeurodivergenceMental HealthPatient Advocacy

After a wave of passionate listener feedback sparked intense conversations behind the scenes, The Bendy Bodies Podcast returns with a candid and heartfelt follow-up. In this episode, Dr. Linda Bluestein is joined by author and communications expert Kate Colbert to openly address the concerns raised about recent content and to set the record straight.

DiagnosisMental HealthPatient Advocacy

In the season five finale of the Bendy Bodies Podcast, Dr. Linda Bluestein reflects on powerful listener feedback and opens up important conversations about language, intent, and identity in medicine. She clarifies the purpose behind episodes on pain neuroscience and mast cells in autism, acknowledges the concerns raised, and discusses the fine line between supporting physiology and honoring identity.

NeurodivergenceMCASPain

In this illuminating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with pain neuroscientist and physical therapist Dr. Adriaan Louw to explore the power of education in managing chronic pain. With a passion for helping people understand the "why" behind their symptoms, Dr.

Brain FogNeurologyResearch

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down once again with fellow pain specialist Dr. Pradeep Chopra to take listeners on a guided “walk” through the GI tract.

MALSCraniocervical InstabilityGI Issues

In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast.

GeneticsDysautonomiaNutrition

In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS).

AnesthesiaWomen's HealthCraniocervical Instability

Dr. Linda Bluestein dives deep into the tangled web of gastrointestinal disorders with neurogastroenterologist Dr. Zachary Spiritos. They tackle the silent struggles of patients with EDS (Ehlers-Danlos Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), and MCAS (Mast...

GI IssuesPOTSDysautonomia

Speech-language pathologist and vocal specialist Stacy Menton joins Dr. Linda Bluestein to expose the surprising links between connective tissue disorders like EDS and common (but misunderstood) issues with voice, breathing, and swallowing.

NeurologyResearchPhysical Therapy

What if your brain fog, fatigue, and hypersensitivity weren’t “just anxiety”—but signs of a much deeper immune malfunction? In this episode, Dr. Pradeep Chopra co-hosts a rare and revealing conversation with Dr. Theoharis Theoharides, the scientist who first discovered that mast cells communicate with microglia in the brain.

Brain FogInflammationGI Issues

You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches.

NeurodivergenceNeurologyPhysical Therapy

What if your breast implants were silently fueling your fatigue, anxiety, rashes, or brain fog—and no one believed you? In this powerful episode, Dr. Linda Bluestein speaks with renowned breast surgeon Dr. Eva Nagy who’s become a global voice for patients suffering from Breast Implant Illness (BII).

Brain FogInflammationGI Issues
147

What if your rushed, robotic medical visit isn’t just frustrating, but a symptom of something much darker? In this powerful episode, Dr. Linda Bluestein sits down with Dr. Victor Montori, author of Why We Revolt, to explore what’s truly broken in healthcare and why patients and clinicians are suffering on the same side of the fight.

ResearchMental HealthPatient Advocacy

What if your symptoms weren’t isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk.

GeneticsNeurologyInflammation

What if the diagnosis was just the beginning—and the root cause was hiding in plain sight? In this riveting episode, Dr. Linda Bluestein welcomes pediatrician and integrative medicine expert Dr. Pejman Katiraei, whose work with children struggling with autism, mold exposure, and mast cell activation reveals a shocking truth: many kids aren’t just neurodivergent—they have neuroinflammation.

NeurodivergenceSleepInflammation
144

What if your body’s collapse wasn’t burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness.

ME/CFSLong COVIDResearch

What if your dental history held the key to a complex diagnosis no one’s caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who’s uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair.

TMJ/TMDAnesthesiaGI Issues

What if the very things you do to feel or look better are quietly making you worse? In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein answers listener questions—but what begins as a practical Q&A quickly dives into rarely discussed truths about cosmetic procedures, EMFs, neuroinflammation, and even fragrances as dangerous triggers.

AnesthesiaWomen's HealthInflammation
141
with Melissa Dickinson, Tom Query

Top Therapists Share Tips for Surviving EDS

What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship.

NeurodivergenceWomen's HealthSurgery

What if the fatigue you feel isn’t just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)—a misunderstood condition that masquerades as general exhaustion but goes much deeper.

ME/CFSBrain FogFatigue
139

What if the symptoms you've been chasing—brain fog, fatigue, bladder pain, even anxiety—were all connected by one overlooked cell type? In this fascinating episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by Dr.

HeadachesBrain FogPelvic Health
138
with Dr. Linda Bluestein

Lower Your EDS Pain | Office Hours

Which pain medications actually help in EDS, whether a formal diagnosis is worth pursuing, plus visceroptosis, posture braces and clinics that refuse care.

GI IssuesPhysical TherapyPain

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience neurological symptoms, chronic pain, and bladder/bowel dysfunction.

GeneticsCraniocervical InstabilityNeurology

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect.

ME/CFSLong COVIDDysautonomia
135

In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein dives deep into the complex world of hormones, menopause, and connective tissue disorders. She explores how estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms.

Women's HealthInflammationNutrition

Immunologist Dr. Kara Wada on why Sjögren's is so often missed, and how it overlaps with hypermobility, dysautonomia and MCAS.

InflammationGI IssuesPOTS

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with Dr. Matthew Watto, an internist and co-host of The Curbsiders podcast, about how patients can work effectively with their internist to get the best care.

GI IssuesPainDiagnosis

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia.

Brain FogNeurologyInflammation

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions.

Pelvic HealthWomen's HealthPhysical Therapy
130
with Dr. Irwin Goldstein, Dr. Sue Goldstein

Hidden Causes of Painful Sex with Dr. Irwin Goldstein & Sue Goldstein

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein. This amazing husband and wife team share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging...

Pelvic HealthWomen's HealthSurgery

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with functional medicine expert Dr. Jill Carnahan about tackling complex conditions like Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), and POTS.

Integrative MedicineGI IssuesPOTS

In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes.

AnesthesiaSurgeryPOTS

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with her personal physical therapist, Dr. Emily Bohan, about the often-overlooked role of pelvic floor health in people with hypermobility, EDS, and related conditions.

Pelvic HealthWomen's HealthNeurology

In this deeply meaningful episode of the Bendy Bodies Podcast, Dr. Linda Bluestein reconnects with her very first EDS patient, Lauren Vasko. Lauren shares her remarkable story of resilience, from navigating life in a wheelchair, managing Cranial-Cervical Instability (CCI), and battling POTS, to regaining her independence and teaching art in Kenya.

Craniocervical InstabilityGI IssuesPOTS

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with leading autonomic specialist Dr. Satish Raj about POTS (Postural Orthostatic Tachycardia Syndrome), dysautonomia, and orthostatic intolerance. Dr. Raj delves into the complexity of these conditions, including their diverse causes, challenges in diagnosis, and innovative treatments.

POTSExerciseDysautonomia

Which food allergy tests actually mean anything, how to manage MCAS, and what Anthem's reversed anesthesia limit meant for EDS patients. Office Hours Q&A.

AnesthesiaSurgeryNutrition

In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with otolaryngologist Dr. Shu Das about the unique ENT challenges faced by people with Ehlers-Danlos Syndrome (EDS). Dr. Das shares his expertise on common issues like tonsil stones, chronic sore throats, and sinus infections, while diving deep into how EDS impacts vocal cords, nasal health, and even hearing.

AnesthesiaSurgeryMCAS

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with two brilliant young researchers, Jeevan Mann and Delaney Kenney, about their groundbreaking work in Ehlers-Danlos Syndromes (EDS). Jeevan shares insights into using 3D skin models for understanding hypermobile EDS, while Delaney discusses her biorepository project and the hope for future treatments.

GeneticsResearchDysautonomia

In this candid solo episode of the Bendy Bodies podcast, I share my insights into Mast Cell Activation Syndrome (MCAS) and its intricate connection to hypermobile Ehlers-Danlos Syndrome (hEDS) and Postural Orthostatic Tachycardia Syndrome (POTS).

POTSDysautonomiaMCAS

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Chicago-based physical therapist Wendy Wagner to discuss the unique challenges of physical therapy for hypermobility and Ehlers-Danlos Syndrome (EDS).

Craniocervical InstabilityExerciseInjury Prevention

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, explores the impact of nutrition on joint hypermobility with Lorna Ryan, chair of the Diet and Nutrition Working Group for the Ehlers Danlos Society.

FatigueGI IssuesNutrition

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, has an in-depth conversation with Dr. Clair Francomano, a leading expert on connective tissue disorders and Chair of the Medical and Scientific Advisory Board for the Ehlers-Danlos Society.

GeneticsPOTSResearch
117
with Dr. Linda Bluestein

My Life With EDS | Office Hours

In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS).

SurgeryDance & Performing ArtsNutrition

Tarlov cyst symptoms, why they are so often missed, and what surgery involves — with Dr. Frank Feigenbaum, the neurosurgeon who operated on Dr. Bluestein.

NeurologySurgeryResearch

In this inspiring episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, interviews Adji Cissoko, principal dancer with the Lines Ballet Company. Adji shares her incredible journey of balancing natural flexibility with the strength needed to thrive in professional ballet.

ExerciseInjury PreventionDance & Performing Arts

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with physical therapist and yoga expert Lara Heimann to uncover the hidden dangers of yoga for hypermobile individuals. As the creator of the LYT Method, Lara combines yoga with functional anatomy to ensure that movement is safe and effective for those with joint instability.

Pelvic HealthExerciseInjury Prevention

In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain.

Craniocervical InstabilityIntegrative MedicineSurgery

In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, is joined by renowned clinical geneticist Dr. Paldeep Atwal to delve into the complexities of genetics in hypermobile Ehlers-Danlos Syndrome (hEDS) and related conditions.

GeneticsResearchDiagnosis
111
with Dr. Linda Bluestein

My Essential EDS Advice | Office Hours

In this unique solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, answers listener-submitted questions about hypermobile Ehlers-Danlos syndrome (hEDS), POTS, and related conditions. From understanding the importance of a correct diagnosis to tips for managing symptoms, Dr.

POTSDiagnosisMental Health

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD).

GeneticsResearchPhysical Therapy

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD).

InflammationResearchPhysical Therapy
with Dr. Linda Bluestein

Welcome, Bendy Buddies!

Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now!

ResearchPatient Advocacy

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength.

Pelvic HealthSleepExercise

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions.

FatigueSleepPOTS

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences.

Brain FogIntegrative MedicineDysautonomia

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tissue disorders, inflammation, and hormonal factors.

GeneticsInflammationIntegrative Medicine

In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr.

SleepInflammationDysautonomia

In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), and the upcoming updates in diagnostic criteria.

GeneticsResearchDiagnosis
with Dr. Linda Bluestein

Season 4 Wrap: Reading Your Comments

Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics.

ResearchDance & Performing ArtsPatient Advocacy

Ashok Gupta on breaking the chronic illness cycle: how the brain's danger signals sustain ME/CFS symptoms, what brain retraining involves, and its myths.

FibromyalgiaME/CFSLong COVID

Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions.

FatigueGI IssuesResearch

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos...

Brain FogPOTSDysautonomia

In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms.

Injury PreventionDance & Performing ArtsPain

Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients.

InflammationIntegrative MedicineNutrition

In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints. She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program.

Craniocervical InstabilityInjury PreventionPhysical Therapy

This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin.  The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS).

DysautonomiaMCASPhysical Therapy

In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment.

ExerciseInjury PreventionPhysical Therapy

Occupational therapist Corinne McLees on hand pain, weakness and injury in EDS — ring splints, exercises, and protecting your thumbs and wrists.

ExerciseInjury PreventionPhysical Therapy

In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks.

ME/CFSLong COVIDBrain Fog

In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics...

Brain FogFatigueSleep

In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved.

NeurodivergenceExerciseDiagnosis

In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. 

Eating DisordersNeurodivergenceDance & Performing Arts

In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses.

NeurodivergenceDiagnosisMental Health
85
with Dr. Leonard Weinstock, Dr. Lawrence Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, Jill Brook, MA

Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA

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In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr.

POTSResearchDysautonomia

In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.

SurgeryDysautonomiaPhysical Therapy

In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.'  Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management.

ExercisePhysical TherapyPain

In this episode, YOUR guest is Colin Halverson, PhD.  He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic.

ResearchDiagnosisMental Health

In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters.

ExerciseInjury PreventionNutrition

In this episode, YOUR guest is Dacre Knight, MD.  Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.

FibromyalgiaPOTSDysautonomia

In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles.  His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences.

MALSGI IssuesPOTS

In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered.  Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the...

NeurodivergenceDiagnosisMental Health
76
with Julie Robinson-Smith, DDS

Orofacial Pain with Robinson-Smith, DDS

In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine.  Following dental school, she served in the US Air Force for five years as a general dentist.

TMJ/TMDInjury PreventionPhysical Therapy

In this episode, YOUR guest is Patricia Stott, DPT, physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions.  Dr Stott and Dr Bluestein presented together on integrative approaches to pain management at the EDS Society Global Learning Conference in...

Craniocervical InstabilityInflammationIntegrative Medicine

In this episode, where we close out Season 3 of the podcast and kick off Season 4, YOUR guest (and host!) is Bendy Bodies founder, Dr. Linda Bluestein, the Hypermobility MD.   YOUR guest co-host – serving up questions to Dr.

AnesthesiaResearchDiagnosis

Dr. Pradeep Chopra on hip, knee, ankle and foot pain in hypermobility — why rolling ankles matter even without pain, and how one joint refers to another.

SurgeryExerciseInjury Prevention

Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pain throughout the body with Pradeep Chopra, MD, we focus on an often-overloaded area of the body: the upper extremities.

NeurologyExerciseInjury Prevention

Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to find the root cause of something.

Chiari MalformationTMJ/TMDHeadaches

Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS).  Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting answers can be challenging.

Pelvic HealthGI IssuesPOTS

Symptomatic joint hypermobility can be difficult to understand and can present in so many different ways. Recently, Victoria Daylor, Dr. Cortney Gensemer, Dr. Russell Norris, and Dr. Linda Bluestein published a CME two-part series titled “Hope for Hypermobility - An Integrative Approach to Treating Symptomatic Joint Hypermobility”.

GeneticsResearchPhysical Therapy

Eating disorders are complicated and not uncommon in artistic athletes. Common comorbidities of symptomatic joint hypermobility (SJH), like mast cell activation disorder (MCAD) or gastroparesis, may contribute to disordered eating, which can spiral into an eating disorder.

Eating DisordersGI IssuesDance & Performing Arts

Upper cervical instability (UCI) occurs quite commonly in the mild form and more rarely in the severe form in those with symptomatic generalized joint hypermobility (S-GJH).  Both can be impactful and are frequently missed.  An international team of physical / physiotherapy...

Craniocervical InstabilityNeurologyPhysical Therapy
65

Thriving as a professional artist with Ehlers-Danlos Syndrome can be challenging.  Finding a balance between pushing yourself physically and listening to your body when it needs rest is difficult when you are part of a company.  How do you push yourself to the edge of your...

ExerciseInjury PreventionDance & Performing Arts

Chiropractic care has been around for over 100 years, but many people don’t quite know what it entails. Artistic athletes may be told to add regular chiropractic visits to their regimen to help relieve pain without really understanding why.  How does a method best known for joint manipulation work for those with hypermobile bodies?

Craniocervical InstabilityInjury PreventionDance & Performing Arts

Living with a chronic illness like Ehlers-Danlos Syndrome (EDS) can be demoralizing. You may not have access to the care you need, loved ones do not get it, and loneliness can be a reality for so many people. Gigi Robinson was diagnosed with EDS at 11 years old, and one of the lucky ones to receive support and care from a very early age.

Eating DisordersWomen's HealthIntegrative Medicine

Headaches and migraines are common in many chronic illnesses, and people with hypermobility often struggle with chronic head pain for a variety of reasons. But what is the difference between migraine and other types of headache?

HeadachesSleepNeurology

Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life. How do you find balance? How do you find a way forward and regain joy in your life?

POTSDysautonomiaMCAS

Dance injuries can be career ending especially for those with joint hypermobility. Competition dance or precision performance can introduce a whole new set of challenges, whether it’s dancing as part of a team, competitive cheer, or synchronized swimming.

FatigueWomen's HealthExercise

For most artistic athletes, competition is a part of life. Whether you’re a dancer, skater, gymnast, or cheerleader chances are you’re competing at some point. Competitions can be grueling, multi-day events consisting of 14-hour days, multiple performances, and little access to fresh whole foods.

SleepExerciseInjury Prevention

Hypermobility disorders can lead to health complications that may require surgery. Joint hypermobility and associated conditions can present  complications for  surgery, anesthesia, and more. If you’re anticipating  surgery, how can you, your surgeon and anesthesia care team be as prepared as possible for those hypermobile “quirks”?

AnesthesiaSurgeryDiagnosis
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Dance and other performing arts are, by nature, stressful. Stress can easily develop into anxiety, which is exponentially more common in the hypermobile population than the general population. How can you distinguish between stress and anxiety?

Dance & Performing ArtsMental HealthPatient Advocacy
56

As the weather changes and schedules become busier, staying healthy can feel like a huge challenge. Artistic athletes may struggle to keep their bodies at optimal performance level, and fighting off infectious illnesses may seem like an uphill battle.

GI IssuesDance & Performing ArtsNutrition

As a young dancer, Jazz Bynum enjoyed the benefits of being “bendy”.   Later, she experienced more than her fair share of injuries but it wasn’t clear how these could be connected. A diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) gave Jazz the information necessary to build the resiliency and strength she needs as a professional dancer with Ballet West.

SurgeryExerciseInjury Prevention

Mast cell disorders are prevalent in the hypermobile population, but can often go undiagnosed.  Persistent pain can be initiated and perpetuated by mast cells, which have also been referred to as “gatekeepers of pain”.  How can someone who suspects mast cell issues go about seeking relief for mast cell-related pain?

HeadachesGI IssuesNutrition

Hypermobility is far more prevalent in dancers, circus performers and other aesthetic athletes. While some hypermobile artistic athletes have asymptomatic joint hypermobility, others have symptoms due to an underlying hypermobility or connective tissue disorder.

Injury PreventionResearchDance & Performing Arts
52

Jaw pain affects a relatively large percentage of the general population, but is even more problematic for those on the hypermobility spectrum.  It’s not often something we think of addressing, however, until it’s clamoring for our attention.

FibromyalgiaTMJ/TMDHeadaches
51

Hypermobile athletes and artists are often excellent movers - until they hit “the wall”. Sometimes you hit a point where even basic movements become a struggle. How can you continue moving without increasing your pain? Bendy Bodies discusses this important topic during pain awareness month with Jeannie Di Bon, a movement therapist who literally wrote the book on moving pain-free with hypermobility!

ExerciseInjury PreventionDysautonomia
50

As a physical therapist for circus artists and dancers, Dr. Jen Crane regularly treats artistic athletes with hypermobility. As a circus artist and former dancer who is also diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), Jen Crane intimately understands the struggles of these athletes.

ExerciseInjury PreventionDance & Performing Arts
49
with Bonnie Moore Southgate

Pioneering a Path with Bonnie Moore Southgate

As an elite ballet dancer, Bonnie Moore Southgate danced as a soloist first with American Ballet Theatre, then with the Royal Ballet. Struggling with injuries and pain for years, Bonnie retired from dance and eventually was diagnosed with Ehlers-Danlos Syndrome.

Integrative MedicineInjury PreventionDance & Performing Arts

Hypermobility can help the artist create aesthetically pleasing lines with one of the most obvious locations involving the foot. And while many artists envy the banana feet that sometimes accompany excessive ranges of motion, having hypermobile feet and ankles can just as often bring complications.

ExerciseInjury PreventionDance & Performing Arts

Evidence shows that neurodivergency occurs at a higher rate amongst people with hypermobility disorders.  And we know that anxiety is also prevalent in the hypermobile population. When we look at neurodivergency, hypermobility, anxiety, and dysautonomia, we see hints of lines drawn between them.  Might science soon be able to connect the dots?

NeurodivergenceResearchDysautonomia

People with hypermobility often struggle with fatigue.  They want more energy, and know that exercise and adequate sleep can help. But what is the role of nutrition in combating fatigue? Bendy Bodies team member, Kristin Koskinen, RDN, chats with us on how what we eat can influence how we feel.

FatigueNeurodivergenceGI Issues

Fatigue is common in people with chronic disease. Pain, fatigue, and depression can feed into each other and become a vicious cycle that’s difficult to break. Combating fatigue can be particularly difficult for those with bendy bodies and comorbidities.

FatigueSleepResearch

Pregnancy can be a time of new physical challenges, and hypermobility may make the season even more complex. Hormones can change tissue elasticity and the body may struggle to adapt. Dr. Shanda Dorff began working with connective tissue disorders in 2008 and has helped countless women through pregnancies and beyond.

Pelvic HealthWomen's HealthSurgery

Artistic athletes like dancers, gymnasts, and skaters require highly skilled medical care in order to maintain peak health while operating at an elite level. Understanding the unique demands placed on their bodies is crucial for their physicians.

ExerciseInjury PreventionResearch
42

Hypermobility disorders can be difficult to diagnose, with no one clear path forward. Without an obvious road to walk, people with chronic pain who suspect hypermobility disorders may feel defeated and overwhelmed, struggling to find the help they need.

GeneticsNeurologyResearch

People struggling with a chronic illness often feel overwhelmed at the idea of pursuing a passion. Health issues may seem insurmountable when trying to go after your dream, and you may feel hopeless and alone on your journey.

Eating DisordersFatigueDysautonomia

What is overstretching, and why should we talk about it? As the artistic world seems to demand ever more extreme ranges of motion from its dancers and athletes, many people turn to overstretching  as a way to stay competitive, forcing an artificial hypermobility in some joints.

ExerciseInjury PreventionDance & Performing Arts

Artistic athletes often push their flexibility to the limit, both for competitive and aesthetic reasons.   Nowhere are limits tested more than in rhythmic gymnastics where hypermobility tends to be the norm.

ExerciseInjury PreventionDance & Performing Arts
38

Chronic illness can make your life feel filled with insurmountable obstacles. Pursuing your dreams, even in the face of health issues, may feel hopeless. But moving forward, even in small increments, you can accomplish great things.

Chiari MalformationPOTSExercise

Navigating medical care can be a daunting task at the best of times, but when you have a chronic disorder that is largely an invisible illness, you may find yourself bewildered and frustrated trying to get the care you need.

GI IssuesDance & Performing ArtsDiagnosis
36

What exactly is dry needling? How is it different from acupuncture? What sort of issues might it be used for? Dry needling can be a vital part of an artistic athlete’s healthcare, but sometimes can be misunderstood. Mandy Blackmon, DPT, head physical therapist for Atlanta Ballet's company dancers also serves as an instructor in the Dry Needling Series for Myopain Seminars since 2014.

FibromyalgiaGI IssuesPOTS

Mast cells: interesting and mysterious. You can’t be born without them, but they don’t show up in blood tests. They’re found throughout the body and can affect multiple systems in vastly different ways. What makes them misbehave?

InflammationIntegrative MedicineGI Issues

Gastroenterologist Dr. Leonard Weinstock on the EDS–POTS–MCAS triad: why GI problems are so common in hypermobility, and how to get properly evaluated.

Long COVIDAnesthesiaInflammation
33
with Marimba Gold-Watts, Mariana J. Plick, Kyle Thompson, Cailey Brandon

Conquering the Wall: A Round Table Discussion

Do you live with a hypermobility disorder? Whether you have a connective tissue disorder like Ehlers-Danlos syndrome or Marfan syndrome, or a hypermobility spectrum disorder, you are not alone.  These conditions affect millions of people worldwide and disproportionately impact performing artists such as dancers, gymnasts, circus artists, and more.  What do these have in common?

POTSExerciseDance & Performing Arts

Neurodivergency occurs at a much higher rate amongst people with hypermobility disorders like Ehlers-Danlos Syndromes and hypermobility spectrum disorders.

Brain FogFatigueNeurodivergence

A very high percentage of dancers and athletic artists struggle with perfectionism: it’s what makes us so good at what we do, while at the same time can be unhealthy for us as individuals. Bonnie Robson, world-renowned psychiatrist and dance medicine specialist, is back to talk to us about perfectionism in the arts world.

Eating DisordersDance & Performing ArtsMental Health

Jill Miller’s life was upended with shocking news of end-stage osteoarthritis in her early forties. This led to her exploration of healthy ways of releasing and restoring her hypermobile body. Her study of the body led her to fascia and its importance in healthy motion.

Injury PreventionDance & Performing ArtsNutrition

Photography encapsulates a moment in time like no other art form, and every artist walks into the studio wanting to capture their best selves. Some walk away ecstatic, while others leave unsatisfied or even injured. Dancers and photographers alike may feel pressure for photos that continue to push the body - and safety - to its limits, to capture the next “WOW!” shot.

Injury PreventionDance & Performing ArtsPhysical Therapy
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with Jennifer Milner, Kristin Koskinen, Aidan Leslie

Caring for the Adolescent Artist

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What support does a hypermobile young artist need? Hint: a lot. Hypermobile dancers, gymnasts, skaters, circus artists: the same hypermobility that gives them extraordinary lines and range of motion, also makes them vulnerable to injury, mental health issues, and more.

ExerciseInjury PreventionDance & Performing Arts

What the heck is a pelvic floor and why should you care? The pelvic floor is a collection of muscle and connective tissue forming a hammock at the bottom of your pelvis. Hypermobile people should be especially aware of their pelvic floor, as connective tissue disorders can cause ligaments and tendons to stretch and weaken, creating problems in this crucial area of the body.

Pelvic HealthWomen's HealthNeurology

Do you love a fresh start? Have you ever made a new year's resolution and then dreaded it?  It’s common for people to look at eating habits, make bold, sweeping commitments, and vow to be perfect this month/year/lifetime. But that’s not realistic, or healthy - physically or emotionally.

Eating DisordersDance & Performing ArtsNutrition

Why are hypermobility disorders painful and what can be done about it? When discussing conditions associated with hypermobility, like Ehlers-Danlos Syndromes (EDS) or hypermobility spectrum disorders (HSD), pain is often mysteriously left out of the conversation despite the fact that persistent pain can be very much a part of many peoples’ lives.

GeneticsSleepNutrition

Living with hypermobility disorders often means learning to live with chronic pain, and as pain is a whole-person experience - physical, emotional, and mental - it stands to reason that pain can have a profound influence on every facet of our daily lives.  Joining us for this episode is Beth Darnall, a Stanford pain scientist, international speaker, evidence-based psychologist, and author.

SleepIntegrative MedicineResearch
22

In this second interview with Dr. Svetlana Blitshteyn, board-certified neurologist and director of the Dysautonomia Clinic, we go beyond identifying common disorders such as POTS (Postural Orthostatic Tachycardia Syndrome), and take a look at how people with these conditions can improve their quality of life.  Dr.

Long COVIDFatigueSleep

Dysautonomia is an umbrella term used to describe disorders of the autonomic nervous system (which controls all the automatic functions of the body like blood pressure, heart rate, digestion, temperature regulation, etc.). Dr.

Chiari MalformationHeadachesPOTS

Osteoporosis is a disease that affects tens of millions of people each year. Dancers and other high-level athletes are often at higher risk due to low body weight, increased time indoors, and suboptimal nutritional support.  Rebekah Rotstein is a former pre-professional dancer...

ExerciseInjury PreventionDance & Performing Arts

In this second interview with Bendy Bodies host Dr. Linda Bluestein, she explores the realities of living with a connective tissue disorder. As a renowned hypermobility expert, Dr. Bluestein discusses issues that can exist alongside Hypermobility Spectrum Disorder (HSD) or Ehlers-Danlos Syndromes (EDS), such as autoimmune issues, dysautonomia, and more.

SleepResearchDysautonomia

How do you prepare a hypermobile student for the rigors of the professional dance world, finding that balance of exploring their gifts while moving cautiously to avoid injury? In this episode, we are joined by Mariaelena Ruiz, director of Cary Ballet Conservatory’s Professional Training Program and recipient of the 2019 Outstanding Teacher Award at the Youth America Grand Prix NYC Finals.

ExerciseInjury PreventionDance & Performing Arts

For people working with artistic athletes such as dancers, circus artists, and gymnasts, training the hypermobile body brings its own set of challenges. Shepherding a “wonky body” through healthy training may feel overwhelming and frustrating and, at times, like you’re spinning your wheels.

FatigueExerciseInjury Prevention

Extreme flexibility has permeated social media and influenced every physical art form, from dance to ice skating and of course circus arts. As artistic athletes are asked to explore greater and more unstable end ranges of motion, performers are often left to figure out how to stay healthy for themselves.

ExerciseInjury PreventionDance & Performing Arts

Hypermobility is often desired in dancers for the long, beautiful lines it affords. But hypermobility adds its own challenges to dancers seeking a long, healthy career on the stage.  In this episode, we chat with principal dancer from Ballet West and international guest star Beckanne Sisk about how she manages her hypermobility.

ExerciseInjury PreventionDance & Performing Arts

Nowhere is flexibility and hypermobility more valued and explored than in the circus arts! But while circus artists are highly skilled and extremely strong, working in extreme end ranges of motion comes with its own set of issues and potential injuries.

ExerciseInjury PreventionDance & Performing Arts

Many conditions found in "bendy" people have a neurologic basis, impacting both the brain and nervous system. In this Bendy Bodies episode, Dr. Ilene Ruhoy, the Medical Director and Founder of the Center for Healing Neurology, walks us through the integrative approach she takes to healing the brain and the body.  Dr.

HeadachesBrain FogIntegrative Medicine

World renowned expert in autoimmune disorders and the Founder and Director of the Center for Multisystem Disease, Dr. Jill Schofield, generously chatted with us in a recent interview. Autoimmunity (dysregulation of the immune system) is genetically inherited and will often have multiple triggers.

POTSResearchDysautonomia

In this episode, guest co-host Jennifer Milner interviews Bendy Bodies’ own host, Dr. Linda Bluestein!  Hypermobility disorders can be frustratingly hard to diagnose or even define.

GeneticsDance & Performing ArtsDiagnosis

Living with stress and anxiety has become the rule rather than the exception in today’s world. Everyone develops coping strategies of some kind, but without encouragement and guidance these strategies can be dysfunctional and even harmful.  Dr.

SleepDance & Performing ArtsPhysical Therapy

Dancing with a hypermobile body brings its own set of challenges, from a general lack of stability to a slower recovery time. As a young pre-professional, a dancer might not understand why she must find conscious strength before subconscious strength; why daily activities must...

ExerciseInjury PreventionDance & Performing Arts

Your DNA holds many secrets.  Why do drugs work on some people and not on others?  Why are conditions expressed so differently in different family members?  How might hypermobility disorders, dysautonomia (like POTS) and Mast Cell Activation Syndrome (MCAS) be related and how does coronavirus fit into all of this?

GeneticsIntegrative MedicineResearch

PLEASE NOTE***:  The following episode was recorded in mid-April 2020, just four weeks after the World Health Organization declared the spread of SARS-CoV-2 (the virus that causes the disease known as COVID-19) as a global pandemic.

Long COVIDIntegrative MedicineResearch

Traits that can make a dancer so valuable in the dance world - drive, perfectionism, obsessing over details - also put them at higher risk for mental health disorders. And while physical health resources become ever more commonplace in the dance world, mental health resources remain woefully lacking, oftentimes uncomfortably left in a hidden half-shadow.

Eating DisordersDance & Performing ArtsDiagnosis

While many dancers strive to fuel healthily, making the most out of your meals can be overwhelming. In today’s world especially, dancers need strong immune systems and healthy bodies ready for whatever challenge may come next.

InflammationGI IssuesExercise

Dancers train constantly to attain peak performance, working long hours to achieve physical and artistic perfection. Unfortunately, mental health is often sacrificed for that perfection.  Terry Hyde, former dancer with the Royal Ballet and psychotherapist with patients all over...

Dance & Performing ArtsPainMental Health

Hypermobility can affect every joint, but perhaps the most complicated one to understand and train is the hip. With a high prevalence of hip injuries in hypermobile dancers and athletes, proper diagnosis and treatment is critical.

SurgeryInjury PreventionDance & Performing Arts