Supporting a teen with a hypermobility disorder involves several important strategies:
- Stay calm and be their advocate: Your child will mirror your emotional state. Remaining steady helps them feel secure
- Help them build resilience: Encourage self-advocacy, positive self-talk, and avoiding comparison with peers
- Set realistic goals: Use SMART goals (Specific, Measurable, Achievable, Relevant, Time-bound) to create manageable milestones
- Organize medical records: Keep a one-page medical summary to bring to appointments
- Explore resources: Books like Disjointed and Conquering Your Child's Chronic Pain, plus the Bendy Bodies Podcast, offer practical guidance
Many teens with hypermobility disorders go on to lead fulfilling, functional lives. Some symptoms, such as POTS, may even improve over time.