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The Bendy Bulletin

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Hypermobility syndromes like the Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) are vastly underdiagnosed and misunderstood in the current healthcare system.  Bendy Bodies LLC created these bulletins to give insight into these syndromes and provide you and your medical team with information to improve your quality of life.

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You Deserve To Be Heard.

Share Your Story
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Thank you for sharing your story. We may be in contact with you.

Do you want to share your story with others who have chronic illnesses? We believe sharing your experience can bring awareness to the challenges of living with a chronic illness and the difficulty of navigating the healthcare system.

Please note:

  • Your story should be 300 - 600 words.

  • Include a high resolution photo that you would like to be featured alongside your story.

  • A member of the Hypermobility MD team may contact you for further discussion.

  • By submitting your story, you grant us permission to publish your story on our website. We may edit your story for clarity or brevity.





 

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