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How EDS and HSD Impact Fascia and Pain with Tina Wang, MD
01:13:18

How EDS and HSD Impact Fascia and Pain with Tina Wang, MD

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains how fascial dysfunction contributes to myofascial pain, joint instability, and other challenges faced by individuals with hypermobility. Dr. Wang also discusses innovative diagnostic techniques and treatment approaches, including the use of ultrasound and manual therapy. This episode is a must-listen for anyone who wants to better understand their pain, or is interested in the cutting-edge research and clinical insights on fascia and connective tissue disorders. Takeaways: Fascia’s Role in EDS: Fascia plays a crucial role in connective tissue disorders like EDS and HSD, impacting everything from joint stability to chronic pain. Myofascial Pain: Myofascial pain, often misunderstood, can be a significant source of discomfort in hypermobility conditions due to fascial dysfunction. Ultrasound for Diagnosis: Advanced ultrasound techniques are improving the ability to diagnose fascial changes and guide treatment in EDS patients. Manual Therapy Benefits: Proper manual therapy can help alleviate fascial dysfunction, but it must be approached cautiously, especially in hypermobile patients. Holistic Management: Managing hypermobility-related pain requires a holistic approach, including movement therapy, manual therapy, and collaboration with healthcare professionals. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Tina Wang: Linkedin: @tupelopointe Tiktok: @tupelopointe Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
Overcoming Pain in EDS: Building Stronger Bodies with Whealth Founders Katie & Andrew Dettelbach
01:17:08

Overcoming Pain in EDS: Building Stronger Bodies with Whealth Founders Katie & Andrew Dettelbach

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform that empowers others to manage their pain and regain strength. Katie, a critical care nurse, and Andrew, a kinesiologist, discuss their journeys, challenges with hypermobility, and the innovative methods they’ve developed to help thousands worldwide overcome chronic pain. Learn how movement, strength, and understanding your body can transform your life. Takeaways: Movement and Hypermobility: Finding the right type of movement is crucial for managing hypermobility and chronic pain, though it may take trial and error. Strength Training and Pain Relief: Tailored strength training can significantly reduce pain and improve function in hypermobile bodies. Listening to the Body: It’s essential to distinguish between good and bad pain, adjusting your activities accordingly. Holistic Approach: Programs like Whealth emphasize not just movement but also nutrition, stress management, and environment for better overall health. Self-Compassion: Managing chronic conditions requires patience and self-compassion, recognizing that healing and strength-building is a journey. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Whealth Founders Katie & Andrew Dettelbach: X / Twitter: @spreadwhealth Instagram: @whealth Facebook: @spreadwhealth Youtube: @whealth Tiktok: @whealth_ Andrew IG: @the.shirtlessdude Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
Automatic Thoughts
00:21
Grief, Healing, and Mental Health Strategies for Chronic Illness with Natasha Trujillo, PhD
01:03:50

Grief, Healing, and Mental Health Strategies for Chronic Illness with Natasha Trujillo, PhD

In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic pain, disability, and the loss of identity. She shares valuable strategies for processing grief, moving towards acceptance, and navigating self-compassion. Whether you’ve experienced grief from illness, injury, or significant life changes, this episode provides tools and approaches to living a fuller, more resilient life. Takeaways: Grief Beyond Death: Grief can occur after any significant loss, not just death, especially when living with chronic illness and disability. Acceptance and Resilience: Acceptance is not about giving up; it’s about acknowledging reality while continuing to strive for personal growth and well-being. Grief is Nonlinear: The stages of grief do not always follow a predictable order and can vary widely from person to person. Processing Emotions: Identifying, expressing, and working through emotions are key steps in moving through grief and loss. Self-Compassion: Developing self-compassion is crucial when dealing with grief and loss, as it helps counteract self-blame and fosters emotional healing. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Dr. Natasha Trujillo: Instagram: @npttherapy Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
Booming and Busting
00:29
Group Rehabilitation for POTS with Emily Rich, OT
55:56

Group Rehabilitation for POTS with Emily Rich, OT

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how occupational therapy can help individuals regain control over their daily lives. From adaptive tools to fatigue management strategies, Emily provides practical advice and discusses her groundbreaking research on group rehabilitation programs for POTS. Tune in to learn how to manage symptoms and improve your quality of life with expert guidance. Takeaways: Occupational Therapy for POTS: Occupational therapy can play a crucial role in helping POTS patients manage daily tasks and improve their quality of life through adaptive tools and strategies. Group Rehabilitation Programs: Emily Rich has developed a group-based rehabilitation program that combines occupational therapy, physical therapy, and mindfulness to help POTS patients manage symptoms effectively. Managing Fatigue: Fatigue is a significant challenge for individuals with POTS and EDS. Techniques like pacing, energy conservation, and strategic rest breaks can help manage energy levels. The Role of Compression: Proper use of compression garments, including abdominal binders, can significantly help manage POTS symptoms by improving blood circulation and reducing symptoms like dizziness and fainting. Holistic Approaches: Emily emphasizes the importance of a holistic approach to managing POTS and EDS, incorporating lifestyle changes, movement, and psychological support to enhance overall well-being. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Emily Rich: Instagram / YouTube: @emilyrichot Linkedin: @emilymrich Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network
Stress and Pain are Fast Teachers
00:41
Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhD
01:05:12

Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, PhD

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. She discusses multiple different pain management techniques while emphasizing the benefits of understanding pain neuroscience. Dr. Touza also highlights the value of self-compassion and psychological flexibility in improving quality of life for those with chronic pain. Takeaways: Psychological Factors and Pain: Psychological factors such as stress, anxiety, and fear can significantly influence the perception of chronic pain and its severity. Pain as a Danger Signal: Pain is often a response to perceived danger, not just physical injury. The brain’s interpretation of pain involves complex neural circuits. Cognitive and Behavioral Therapy: CBT and ACT are effective therapies for managing chronic pain by addressing thought patterns and behaviors that influence pain perception. Importance of Self-Compassion: Developing self-compassion and psychological flexibility can improve resilience and coping strategies for individuals with chronic pain. Understanding Pain Neuroscience: Educating patients and healthcare providers about pain neuroscience can empower individuals to better manage their pain and improve their quality of life. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. This episode is sponsored by EDS Guardians. If you want to learn more, check them out here: https://www.edsguardians.org/ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧 Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! 🧬🔬🦓 Learn about Kaitlin Touza: Linkedin: https://www.linkedin.com/in/kaitlin-touza-phd-9117148a/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network

Videos:

Publications:

Why do I hurt? Gaining a better grasp on hypermobility and Ehlers-Danlos Syndrome

Author: Jackie Duda

MDs With Chronic Illness Live in a Different Medical World

Author: Sarah Yahr Tucker

 

Does Hypermobility Make You More Prone to Sports Injuries?

Author: Beth Krietsch

 

Hope for Hypermobility: Part 2-An Integrative Approach to Treating Symptomatic Joint Hypermobility

Author: Victoria Daylor, BFA, Cortney Gensemer, PhD, Russell Norris, PhD, and Linda Bluestein, MD.

 

Hope for Hypermobility: Part 1-An Integrative Approach to

Treating Symptomatic Joint Hypermobility

Author: Victoria Daylor, BFA, Cortney Gensemer, PhD, Russell Norris, PhD, and Linda Bluestein, MD.

 

Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention?

Author: Sarah Lazarus

My daughter and COVID: a tale of 3 doctors

Author: Laura Fernando and Linda Bluestein, MD  

 

What a lifetime of gaslighting by other doctors feels like

Author: Sarah Cohen, MD and Linda Bluestein, MD  

The journey to diagnosing a mysterious illness

Author: Linda Bluestein, MD and Lauren Vasko

 

Besides Being Bendy, Hypermobile Dancers May Experience These Surprising Symptoms

Author: Linda Bluestein, MD

The difficult to diagnose comorbidity that plagues Ehlers-Danlos syndrome patients 

Author: Linda Bluestein, MD and Julie Griffis, PT

Inflammation in the Dancer

Author: Linda Bluestein

The Dancer's Planning Guide to Optimizing Immunity During COVID-19 and Beyond 

Author: Linda S. Bluestein

Diagnosis of mast cell activation syndrome: a global “consensus-2” 

Authors:  Lawrence B. Afrin, Mary B. Ackerley, Linda S. Bluestein et al

"Disjointed | Navigating the Diagnosis and Management of hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders"

Editor: Diana Jovin, Contributors: Paldeep Atwal, M.D., Richard Barnum, M.D., Linda Bluestein, M.D. et al

 

Pain Management in Patients with Hypermobility Disorders

Author: Linda Bluestein 

Perioperative Care in Patients with Ehlers Danlos Syndromes

Authors: Pradeep Chopra and Linda Bluestein 

Understanding Hypermobility in Dancers

Author: Linda Bluestein for Healthy Dancer Canada

Anesthesia and Surgery Safety Card

Created by Linda Bluestein 


 

Podcasts:

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Bendy Bodies with the Hypermobility MD
Podcast

Founder and Host,

Dr. Linda Bluestein, MD

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Hypermobility Problems with Anesthesiologist Dr. Linda Bluestein

Knock Knock, Hi! with the Glaucomfleckens Podcast

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Hypermobility: Separating Fact From Fiction with Dr. Linda Bluestein

Acrobatic Arts Podcast

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Ehlers-Danlos Syndrome and Beyond - Health Connections You Need to Know with Dr. Linda Bluestein

Becoming Immune Confident Podcast

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Holistic Approaches to Navigating Ehlers-Danlos Syndrome, POTS, and MCAS

Modern Pain Podcast

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Pain and Hypermobility with Dr. Linda Bluestein - Mast Cell Matters Series

The POTSCAST

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Hypermobility Disorders: The Power of Proactivity with Linda Bluestein, MD

Acrobatic Arts Podcast

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Treatment Room Secrets #19 - Dr. Linda Bluesteim M.D. - Hypermobility

Treatment Room Secrets Podcast

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Case #05: Kyle
With Dr. Linda Bluestein

Symptomatic: A Medical Mystery Podcast

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Hypermobility Spectrum Disorders with Dr. Linda Bluestein

Redefining Yoga

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If you can't connect the issues, think connective tissues 

The Podcast by Kevin MD

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The Link Between Hypermobility Spectrum Disorders, Hypermobile-EDS, MCAS, and Endometriosis with Dr Linda Bluestein

This EndoLife

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003- Dr. Linda Bluestein M.D.-Hypermobility, Ehlers Danlos Syndrome, and Why You Are Stronger Than You Believe.

 Whealth Podcast

Schedule an Event
with the Hypermobility M.D.

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